Sharing Clinical and Genomic Data on Cancer — The Need for Global Solutions — NEJM: "
The Cancer Moonshot has captured the imagination of researchers, patients, and the public. Putting its ideas into practice will be possible only through the use of an interoperable, scalable data framework in which the quality of data is maintained. Despite the efforts outlined above, this work is still in the early stages. Even with substantial enthusiasm for data sharing and an ever-expanding volume of genomic data sets, the inability to routinely correlate longitudinal clinical information with precise genomic data within a secure and acceptable framework continues to hamper the development of innovative data-driven care pathways for patients with cancer — as does uncertainty regarding the financial sustainability of international data sharing. We believe creating a global informatics ecosystem in which precision oncology seamlessly transitions from cancer diagnosis to molecular discovery to patient recovery must be our common goal.
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